Written by Chloe Debono
March marks Autoimmune Awareness Month, promoting awareness and understanding of Autoimmune diseases. There are so many people out there living with an autoimmune disease or undergoing new diagnosis’ each day. I wanted to share insight into my autoimmune disease journey, how it has affected my studies, and what has helped me to stay on track.
My Diagnosis
In late January 2025 (just over a year ago), I was diagnosed with Graves’ disease. The diagnosis happened extremely quickly and felt surreal and frightening. I had visited my GP one day with symptoms I thought were relatively normal, not knowing the next day I would have a phone call diagnosing me with Graves’ disease (an overactive thyroid).
I was extremely overwhelmed with what was next for me, seeing multiple specialists including an endocrinologist and an ophthalmologist, adjusting to new medication, and managing the everyday symptoms of the disease. It was a rollercoaster of emotions, especially when I learned that if left untreated the condition could have severely affected my eyesight.
Support Systems
The initial diagnosis was extremely challenging, however I was fortunate to have a strong support system of family and friends around me. Having people who listened, understood, provided empathy, and helped me through appointments and difficult days made a world of a difference. Autoimmune diseases can often feel invisible to others, but having even one person who understands and validates your experience can make the journey less isolating.
Reaching Out
It is ok to not feel ok, and it is ok to reach out and ask for help. Charles Sturt University offers free counselling services both online and in-person.
Supporting your University Studies
Balancing university with a new diagnosis was one of the hardest parts of my journey. As the semester commenced, I experienced ongoing fatigue, intense anxiety, and difficulty maintaining focus, amongst many other things. Sitting through classes became overwhelming, and there were times I often had to leave class early because I simply could not focus
Once I acknowledged the symptoms my body was going through, I adapted how I approached university. I would allow myself short breaks during lectures to get fresh air and reset. I had to put in extra effort to stay on top of my assignments, whilst also acknowledging there were some days my body needed rest.
Communicating with my lecturers about my condition was incredibly helpful. They were all so supportive. I also created a study access plan which allowed me to apply for extensions when needed and provided more flexibility. That support played a significant role in helping me pass all my subjects.
Awareness: For Yourself and Others
If someone in your life is living with an autoimmune condition, check in with them, even a small message makes the world of a difference. Every day looks different, some days are manageable, and others not so much. Most importantly if you are living with an autoimmune disease, be kind to yourself and listen to what your body needs, remember you are doing your best!
Charlie blog is a SSAF funded initiative.
